Monday, March 21, 2011

Window to the Soul, er Brain



We had a lovely time back home in Ashfield. Rachel came up from DC on break from law school. Darcy wants to move in with her.



Orion's eyeball! One of the more bizarre symptoms that he had and the one that the MGH doctors loved to check on is Parinaud's syndrome. The tumor compresses the tectum of the midbrain, at the top of the brain stem and prevents Orion's eyes from looking up. Up until a few weeks ago his eyes could go no farther up than dead level. This weekend he said he could, for the first time in six months, see objects in his periphery. A big deal! I asked him to roll his eyes upward and incredibly they moved! With the vanquishing of the tumor all his cranial tissue are rearranging themselves back to normal.

We are back in Boston now in our condo on Beacon Hill. Tomorrow he goes in for his fourth chemo session lasting through the weekend and then we (he) rests and recovers for another two weeks.
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6 comments:

  1. Annie SauterMarch 21, 2011 at 6:45 PM

    Hey Orion:
    Doesn't surprise us that Steve is making your eyes roll. No, really, that is great. Peripheral vision is definitely a good thing. Spring is almost here and you guys I bet are ready!

    Take care. We are thinking of you all the time.
    Love Paul and Annie

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  2. AnonymousMarch 21, 2011 at 9:02 PM

    Wow, this is such a great blog!

    ReplyDelete
  3. Anne TierneyMarch 21, 2011 at 9:19 PM

    Excellent progress! Best wishes on round four,
    Anne & Mike T.

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  4. AnonymousMarch 22, 2011 at 7:22 PM

    So happy that you are doing well, Orion. Steve, your job at Amherst is an old acquaintance...,hopefully he will do well ...as you did. we always think of the planetarium when you had Dick, his dad (now 92), Cal, his dad, and me lying on the floor as you ran the old machine. BTW, Cal just won the science fair with his planaria project!,
    kathie

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  5. UnknownMarch 24, 2011 at 3:54 PM

    Hi to all of you,
    Sounds like so much is happening in the right direction. All wonderful news. Keep it going and keep looking up. We are thinking of you always.
    Ruth and Don

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  6. Marsha CampbellMarch 28, 2011 at 5:13 AM

    Lovely picture of the three of you. How's law school going, Rachel? All of you amaze me. I'm so glad that Orion's "journey" is going so well. Thanks to Steve and Sally for keeping this blog and sharing not only your family struggle but also your amazing research and knowledge about all that is happening to Orion. Love

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