Using protocol ACNS0122 Orion started chemo this evening with an infusion of Carboplatin, 600mg/m2 for an hour. This will be followed by 162mg of Etoposide. He looks great, says he feels fine.
We came in last night, opting to drive early to avoid the latest storm. A lovely breakfast at Finagle Bagle, a stop at the criminally priced Whole Foods, a check with a realty office and back to the hotel room for few hours of Orion napping. Then it was Nurse Steve's duty to apply a piece of Saran Wrap on the port that had been installed last Friday. Orion had schmeared some topical Lidocaine and we needed to cover it. I sealed the wrap with tape and off we went to lunch.
When we got to Dr. Ebb's office the nurse laughed at my makeshift job and suggested the product stick and seal wrap. Then the doctor gave us an armful of 3M Tegaderm for the future.The nurses were scandalized. We had a long chat with Ebb and the radiation oncologist McDonald who has taken a special interest in our progress, I suppose because we end with her sometime this summer in the Proton Therapy Center.
The pediatric oncology nurse escorted us up to Ellison 18th floor pediatric ward. He ended up in a double alone for the time being withbthe wonderful view I posted below.
Port maintenance was a pain. Good luck with the chemo, Orion. Icy mess up here.
ReplyDeleteGlad to hear you scandalized the nurses, I expected nothing less.
ReplyDelete-C
Just another day at the beach, hey Buddy? All joking aside, you look wonderful.
ReplyDeleteLove, Uncle Dave and Jeannie
Actually, I had 2 ports. The first required no maintenance. The second was different and Phil had to to sterile dressing changes o that's what he remembers. He had to learn a lot!
ReplyDeleteLove the view! May this go easy on you, Orion.
Linda