No one expects the Spanish Inquisition! Or brain cancer! This is our personal journey as a family when our 21 year old son was diagnosed with a brain mass and the roller coaster ride that followed. His life was turned upside down and his parent's worst nightmare that started on December 23, 2010.
Wednesday, June 8, 2011
A Rad Afternoon
So we spent our first afternoon at the Burr Proton Therapy Center at MGH for Orion's first of thirty exposures to protons and X-Rays.
We drove in, a hundred miles, without a hitch and then were sent off for blood work, then Orion signed up to be one of forty-five participants in a study of short term and long term effects of proton radiation for the rest of his life.
Our wonderful pediatric oncologist Dr. David Ebb found us down in the waiting room and took us off for a private exam of Orion's formerly feverish feet and to bring Orion up to speed on the prospects of the Boston Bruins. Orion said, uh? Say what?
Ebb was scandalized that radiation used the pediatric group for the blood work and said "no way back up to oncology for the duration". Then Orion was hauled off for his first session. This was much longer as the first time since they had to adjust him and the 250 ton cyclotron and its ports to deliver the proton beam into his spine.
He emerged an hour later all smiles, no nausea, no burning, no marks other than these pictured. We do this for another twenty-nine times so he and I are settling in.
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How often are the treatments going to be done? Will you be living in your Boston apartment or do you have ro go back and forth?
ReplyDeletekathie
30 treatments and we commute from Northampton.
ReplyDeleteNot daily, I hope...
ReplyDeleteNot daily? Why yes indeed, Monday through Friday. A JOB!
ReplyDeleteIf you guys ever want to spend the night, Ori's bunk-bed is always available. No doubt Orion's time in pediatrics will prepare him for its Pirate theme.
ReplyDeleteBet the pay is not great for that job! But the pay out is terrific!
ReplyDelete